Saturday, November 15, 2014
Wednesday, November 12, 2014
I posted before that my mother made me a gofundme 23 days ago. So far four people have donated a combined total of $250. Like I said, I am incredibly grateful for this especially the person who did so anonymously! Apart from my immediate family and not being homeless these four people are the only thing I have to be thankful about this Thanksgiving. So please, I beg you, don't think I'm not grateful. I also know I don't deserve nor am I entitled to anyone else's money. But...
Earlier today my mom was checking it and saw some other campaigns and it was really disheartening. There is a 12 year old dog who raised almost $2000 for a blood transfusion in two days. There is a couple who have raised $550 for their honeymoon in five days. Those are just a couple of the many examples. It makes me feel like I am less important and worth less than an elderly dog or a honeymoon. Like people care about me so little that they won't possibly help save my life, yet there are people who will do that for a dog. Like people care about me so little they won't help drastically improve my terrible quality of life that gets worse all the time, but there are people willing to pay for a honeymoon.
I'm already clinically depressed and this just hurts. I cried a lot, took a nap, and now I'm crying again. It feels like I'm not worth saving so why am I trying so hard?
Tuesday, November 11, 2014
I've been putting it off for about a week now because I just don't feel good. My knee still isn't better, I'm constantly exhausted, my endo started flaring, etc. Yesterday I came to the conclusion that I couldn't keep putting it off because things weren't going to get better. His hair would be so long he'd be blind and tripping over it before I felt up to it. So I decided to suck it up and do it.
The problem is, you can't just pull out the clippers and do as much as you can, stop, and do the rest later. In order to keep the clippers from getting dull (and then buying new ones) you have to give him a bath immediately before hand and dry him with a blow dryer. If he does anything that might get "foreign particles" (aka dirt) on his fur like going outside you have to start over.
So I used up quite a few spoons doing all that. He wasn't being cooperative when it came to his feet which sucks because that's where the majority of seeds stick too. I'm sure it didn't help that he could tell I was frustrated and tired and in pain. Eventually I just... crashed. I don't know how to word it other than that. I told my husband I blue screened. I got dizzy, light headed, nauseous, the works all of a sudden. I just barely managed to call Josh on speaker phone and say "help" before things started going black. Or actually gray, because things don't usually go black when I start to pass out. I know he came and helped me to the couch but I don't really remember it.
Approximately several minutes later I was able to sit up and take Lupin's advice, eating a fun size KitKat left over from Halloween on the end table. It did help. I don't think my blood sugar was low, but it's not outside the realm of possibilities. I was definitely in a spoon deficit the rest of the day. Poor Dobby looks all mangy from being half groomed but I'm not even going to try and fix it for a while. Now I'm back in bed for who even knows how long. Whenever I wash the dogs I wear my swim suit so I don't worry about getting my clothes wet, and I'm still in it now. Eventually maybe I'll put on pajamas instead...
Sunday, November 2, 2014
I mentioned Soylent briefly back in May or June after we ordered it, and it just got here a few weeks ago! Yes, they were back ordered a lot and still are. If you order now it's supposed to take 2-3 months to ship but re-orders are only supposed to take 1-2 weeks. I haven't tested that yet to see how accurate it is.
But anyway, I'm sure you're wondering what Soylent is and why I would want to drink people. From their website:
Soylent™ was developed from a need for a simpler food source. Creator Robert Rhinehart and team developed Soylent after recognizing the disproportionate amount of time and money they spent creating nutritionally complete meals.The reason I am interested is because with my health it is hard to get the nutrition I need. Basically I eat like crap. Most days (almost all) I don't feel up to doing any actual cooking so stick to things that merely require heating, like canned soup or popcorn. On the occasional day I do feel up to cooking I can't use fresh ingredients instead being stuck with canned or frozen. If I were to go grocery shopping in order to get fresh things I would no longer have the spoons to cook! On good days I eat a lot of carbs and processed food, and bad days are even worse. I know when you eat better you feel better, but I'm stuck in a catch 22: I can't eat better in an attempt to feel better unless I already feel better. Plus I know a lot of my problems simply will not be solved by dietary choices anyway. In short this is much better nutritionally than I already eat and also less work, without being crazy expensive ($9-12 a day depending on type of order).
Soylent is a food product (classified as a food, not a supplement, by the FDA) designed for use as a staple meal by all adults. Each serving of Soylent provides maximum nutrition with minimum effort.
There are a lot of nutritional drinks out there, what makes this one better? Several months ago I started keeping around some store brand Ensure, and it's the nutritional drink I have the most experience with. Soylent has at least 100% DV of the micronutrients you need, with only a few going higher than that - the most 171%. If you were to drink 2000 calories of the store brand ensure, you would get a wide range of micronutrients from 64-480% DV! Soylent has a 50/30/20 carb/fat/protein ratio while the store brand ensure is more like 72/10/16 (I know that doesn't equal 100, I rounded down). Carbs are a problem for me with PCOS so if there is an easy way to eat less of them I'll take it. Soylent only has 6g of sugar per day with 27g fiber whereas ensure has 176g sugar and 0g fiber! Plus soylent is dairy free and the ensure is not. I haven't done all the math for other nutritional drinks but at a glance none of them have been as nutritionally complete as soylent. The only issue nutritionally is sodium as it doesn't have quite enough, but it's fixed by just adding some table salt when you mix it.
Okay now that the introduction (that I meant to post about separately months ago) is over let's talk about my experiences. After I got it I made the pitcher seen above out of one pouch and one oil blend as directed. If you eat nothing else this pitcher would be one day's worth of nutrition. My first impression was mixed. The taste was not bad at all but the grainy texture was quite problematic. I will warn you though I am quite a picky eater and have texture issues with other foods as well. I read online that if you let the powder blend "soak" overnight, add some salt, and don't add the oil blend until it's soaked the texture is better. There was nothing I could do about the oil blend at that point but I added the salt and didn't have any more until it had soaked.
The texture definitely improved the next day, but it was still off-putting enough that I couldn't see drinking quite a bit of it on a regular basis. I added some of the ensure I keep around to my cup of soylent and the texture improved tremendously. So I took out a blender bottle and added one carton (8oz) of ensure to 8oz of soylent and shook it up, which was definitely drinkable. For reference that is 494 calories. For that first pitcher I had one blender bottle a day for a few days, with some family and friends trying some as well. I ended up pouring out some of the pitcher as it says it's only supposed to sit for a few days and I wasn't sure I'd know if it started to go bad. From then on I only made half a pitcher at a time.
With the next (half) pitcher I upped it to 10oz soylent/8oz ensure, and either I could have done that the whole time or I had acclimated to the texture a bit as that was fine as well. For reference that is 555 calories. I had between 1-1 1/2 bottles a day for the rest of the week. It seems satiating enough and I didn't feel exceptionally hungry, but I don't get normal hunger cues anyway so YMMV. I didn't really notice any changes in, well, anything that week but I wasn't really drinking that much either. At the end of the week I weighed myself and lost 0.8 pounds, anything less than a pound I generally believe to be within the margin of error and not a real loss/gain unless it is sustained.
Around the end of the first week I injured my knee which I wrote about before. Unfortunately it still isn't better more than a week later. This was, however, a perfect test for soylent! Something like this is really needed when I'm even less mobile and have even fewer spoons than normal. I stayed at the 10/8oz ratio for a few days, then went up to 12/8oz (as much as my blender bottle will hold and 615 calories), then went back down to 10/8oz. The 12/8oz was perfectly drinkable and I didn't notice much difference so that's not why I went back down. Store brand ensure is actually cheaper than soylent at $8/day and with my recent healthcare costs that we can't afford I figured this was a good compromise between nutrition and cost. I was drinking about two bottles a day and thus getting about 2/3 of my calories from the blend, with one meal or a few snacks of solid food. I did notice a small digestive change but it's kinda TMI and not a big deal.
I weighed myself yesterday and lost another 2.7 pounds. That's not much, but with my PCOS, thyroid issues, lack of mobility, etc any loss is a big deal. It also means that my previous 0.8 pound loss probably wasn't a margin of error thing as I've actually lost 3.5 pounds in the last two weeks. I think there are a few things that could explain this:
- It's just water weight/bloat. Maybe I'm ingesting less salt (even though I am adding the recommended amount to my soylent now), or ingesting less gluten as I know gluten can affect endo bloat. The mix I've been drinking is mostly gluten free with some cross contamination as far as I can tell. I don't feel like I have a gluten allergy/insensitivity but it could still affect weight.
- I'm definitely eating less carbs, and it is well known carbs affect weight when you have PCOS.
- Because I've been stuck in bed/on the couch for a week I'm not snacking as much and thus not eating as many calories.
Monday, October 27, 2014
I didn't exactly take an arrow to the knee, but something happened. The other day I was sitting at the computer with one leg tucked under the other, when it happened as I was trying to straighten it back out. It hurt, a lot. Sometimes joints pop for one reason or another and it's no big deal, but this was not one of those times.
Since then I've been stuck in bed or on the couch with my foot up. I can't remember spending this much time in bed since the lupron wore off. Today it was starting to feel a bit better as long as I didn't move it or put any weight on it. It hurt for a little while after moving but for the most part I was fine as long as I stayed still.
I say was because it popped again as I sat down after going to the kitchen. I'm not sure it hurts as much as that first day, but definitely more than the last two days. It's so unbelievably frustrating! It's not like I'm terribly mobile to begin with. And what really sucks is knowing I can't even go to the doctor about it because we don't have the money. Every time I feel like I'm making headway emotionally, with my depression, something else happens. I don't even feel like it's one step forward two steps back anymore. I attempt to take a step forward and life cuts that foot off for being presumptuous. There are only so many feet you can lose before you can't even try anymore. I'm not an octopus.